Silence with a Touch Living with Usher Syndrome

What is it like to live with neither sight nor sound?

“For sure, my eyes will continue changing, which will affect my independence. Mostly, I know I will have to relearn again and again how to navigate my world.” – Jelica Nuccio, living with Usher Syndrome

Usher Syndrome is a genetic condition affecting thousands and thousands of people. This little known condition causes both hearing and progressive vision loss. In this program, you will meet people of all ages who share how their lives have been affected by Ushers, and how they’ve learned to adjust and overcome challenges along the way. Their stories will enlighten and inspire you.

“I can see how my daughter’s vision loss is progressing… Sometimes when she is walking in the room and light is not that bright, I see her bump into things… or if she drops something, she can’t see that it’s right in front of her…” – Halimetou Sankanu, mother of Izzy who is living with Usher Syndrome 

Copyright 2006 Rochester Institute of Technology. All rights reserved. Running time: Approximately 26 minutes. Open Captioned. Cover Illustration: Untitled, Erin A. Goodwin, 1993